The Mass Hospital School Summer Program: Dick Crisafulli's 30 Years of Joy (and Counting)
| "Activity-by-activity; day-by-day; we strive to send them home tired, dirty, and happy"-- from the MHS Summer Program Web site
 | | A MHS Summer Program performance of 101 Dalmations |
When Dick Crisafulli started the summer day program at the Mass Hospital School (MHS) in 1983 he was looking to fill a need. Kids with disabilities--significant physical disabilities from conditions like cerebral palsy and muscular dystrophy--were often idle during the summer months. They risked losing the skills they worked so hard to gain during the school year. Plus they were bored.
Crisafulli, Director of Recreation and Athletics at MHS, saw an opportunity to serve not only MHS student residents, but also the wider community. After all, MHS had the facilities and the adaptive recreation know-how. No child with a disability should spend their summer bored.
Since that first year, the MHS Summer Program has provided summer fun and learning to hundreds of young people ages 6-22 with significant physical disabilities. Easter Seals Massachusetts partners with MHS to run the program and now over 40% of families served come from the community.
The program allows kids to be kids, providing traditional summer day camp activities that embed learning in the fun. Activities range from windsurfing and horseback riding to scrap-booking and interactive technology. Students may also continue their speech and physical therapy on site. Oftentimes recreation is therapy, of course, and the Summer Program incorporates activities such as "Mat Madness" to lend fun to PT needs. "We have an Internet café," Crisafulli boasts, "an indoor riding facility, pool, gymnasium, bowling alleys, greenhouses, our own lake, nature trails. We have, frankly, the best facility you are ever going to have."
 | Fun on the lake in Canton
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When it comes to the learning potential in summer recreation, Crisafulli has long been a true believer.
A Natick native, Crisafulli first became interested in adaptive recreation as a teen athlete (a football player). The town's recreation director recruited him for its Camp Arrowhead which serves residents with disabilities--one of the first of its kind. The rec director needed energetic teens like Crisafulli to help out. It wasn't long, Crisafulli says, before he was hooked. He went on to become active with the Special Olympics and to study adaptive physical education in college, a path that led to the MHS Recreation Department where he's been for much of his career. About this career decision, Crisafulli is effusive, "Each day is a joy. I go home every day feeling pretty good, and then I rush to work each morning."
Crisafulli's passion is contagious and may be reflected in the MHS Summer Program's growth. Back in 1983, the MHS served 23 young people with its first summer program. This year, its 30th, the program anticipates welcoming 140. They now come from 85 greater Boston communities, growth achieved largely through word of mouth. "We don't get a chance to do much recruiting," he reflects.
The same is true for Summer Program staff. Asked if he's now recruiting athletic 16-year-olds to help out, Crisafulli concedes these are very competitive summer jobs, not the kind of teen camp employment that first got him working in the field of adaptive recreation. Most of the Summer Program participants require 1-1 support, and MHS attracts summer staff members who are college and graduate students gaining experience to enter fields such as special education or occupational therapy. "Everyone here is truly dedicated to wanting to make a change in a life. It's not flowery. It's just an honest and sincere type of person that works here."
30 years is a long time to run a summer program. Asked if there is a special story to share from his years of experience, Crisafulli says there are too many. "Every day there's a story--someone who has tried windsurfing for the first time, someone who started out the day fearful and then went on to have a great day." One story he does share, however, is of a young man he got to know over decades. It's a story that speaks indirectly to the gift he's received doing this work over such a span of time... the opportunity to see his work impact whole lives.
A young man, he says, came to camp who was a quad amputee. He started on the swim team, and then learned wheelchair basketball. Eventually, as he grew and returned each summer, he became a volunteer. Then Crisafulli hired him, and then a family with twin boys with cerebral palsy hired him to be their personal care attendant. The man went on to earn his Masters degree. A few years ago, sadly, he passed away. "He lived a full rich life," Crisafulli reflects. "We named our waterfront after him."
Learn more about the Mass Hospital School Summer Program. (There's still room for 2013!)
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Updated Summer Camp Resources for Special Needs!
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 Interested in summer camp options for your child with special needs? Check out the impressive (and recently updated!) collection of resources from the Massachusetts Network of Information Providers for People with Disabilities (MNIP). Find:
- Camp Fairs,
- Camp Guides,
- Online Camp Search Engines and Resources,
- Free Referral Services,
- Financial Assistance Ideas
Visit this DisabilityInfo.org Summer Camp Resources 2013 Web page. |
Mobile Tech: Powerful AT for the Deaf/Hard of Hearing Community
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by Jonathan O'Dell, Assistive Technology Manager and Training Specialist at the Massachusetts Commission for the Deaf and Hard of Hearing
 | Jonathan O'Dell
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Before mobile devices and associated mobile information streams came along, there was the telephone. And while the telephone, especially the cellular telephone, certainly proved to be a boon to hearing people, it presented deaf people with insurmountable barriers. Even people who are severely deaf can usually lipread some of what another person is saying; with the telephone, lipreading becomes impossible. While technology was developed that allowed deaf people to type text at first over land line telephones and then cellular phones, they were either bulky, expensive or unreliable.
Mobile devices, as we know them today, however, have proven to be as much a boon for people who are deaf or hard of hearing as they are for anyone else. Through them we receive messages, texts, emails, Tweets, and Facebook status updates like any hearing individual; the barrier that used to exist in terms of access to what we call "incidental information" (information that may be overheard and of interest, but not specifically directed to someone) is starting to fall away simply due to the sheer ubiquity of mobile computing and communicating devices, and the flood of information that is received on them.
Generally speaking, "mobile devices," here, references smart phones and tablets. These come in a bewildering array of sizes, features, capabilities and operating systems (OS). The operating systems with the most features available today are iOS (Apple) and Android (Google). Windows Mobile and BlackBerry are also on the market, but as yet they do not provide access to Video Relay Service applications (VRS) which allow deaf mobile device users to call hearing users--an essential service.
Video Relay and Point-to-Point Video Calling
Through VRS mobile applications, deaf persons may sign a conversation to an operator (also known as a "communication assistant") using the device's camera. The operator then voices it for the hearing caller and signs back the voiced response. In addition to Video Relay Service apps, are Video Phone apps (and apps that provide access to both). Video Phone apps allow deaf persons to communicate directly in sign language without an intervening operator.
Direct, point-to-point video communications are also accessible through Voice Over Internet Protocol (VoIP) video providers like Skype and Oovoo and through apps like Facetime (native to iOS) and Google Talk (Android). Such point-to-point video services can also boost speech comprehension for some hard-of-hearing individuals due to the added assistance of the visual component. Both VRS and point-to-point video calls are possible with iOS and Android--on tablets as well as smart phones--so long as the mobile device has a front-facing camera, and a fast enough Internet connection (inadequate bandwidth will render video choppy, pixilated, and essentially useless). Users may also need a specific version of their device's operating system since manufacturers continually update their OS, and an OS that is generations behind will usually not be compatible with the newest versions of any Video Phone or VRS software.
Apps for Text, Captioning, and More...
Text and email applications are invaluable for many people who cannot hear or speak; while those who can speak but not hear often use captioned telephone applications. Captioning services, such as Hamilton Captel, allow a caller to use speech and then read the text of the other person's spoken reply as relayed through an operator. Operators hear the other person's voice and repeat their words into speech recognition software. The software sends the text to the deaf or hard-of-hearing caller's phone.
Also useful for some individuals who are hard of hearing are sound amplifier apps. Apps like SoundAMP boost sound for greater clarity. For individuals who are completely deaf, decibel measuring apps can alert them to the presence of loud sounds in their environment. These display when the decibel level of background noise has suddenly peaked against the previous "baseline normal" sound level.
Other applications, such as GPS, while not specifically designed for deaf or hard of hearing people, can free a person from having to ask for directions from someone who may not understand them or whom they may not understand. Also useful are applications for travel, online ordering, and the like which make it possible to conduct business without having to talk to someone else--a boon for people who don't find that easy to do.
In summary, mobile devices and applications are powerful tools for individuals who are deaf or hard of hearing, individuals who will usually choose devices and services based on accessibility features. Such considerations include the availability of closed captions and subtitles (such as provided by Netflix), the adequacy of volume controls, accessory headphone jacks, and more. However, also important are battery life, screen size, weight, portability, the network coverage, and service plan. For example it's important to know who may offer a discounted rate for deaf users who will not use voice plans and instead opt for unlimited text and larger data buckets as part of a text access plan.
Indeed, devices, apps, operating systems, and service plans change and/or multiply constantly. The single best tool to make your experience successful is knowledge, and there is much information online about mobile devices, apps, and plans. As the expression goes, the best consumer is an educated consumer; and it cannot be forgotten that each and every one of us has certain communication preferences and auditory differences that make the search for the "single best device/software/application" as elusive as the hunt for the fabled unicorn.
Compare mobile devices for features of interest to deaf/hh users at this FCC Accessibility Clearing House Web page.
Learn more about specific apps of interest to deaf/hh mobile tech users from this annotated list of Android and iOS apps compiled by the Minnesota Dept. of Health.
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| Adaptive Bikes Provide Greater Access to Cycling |
By Marcy Marchello, Program Coordinator for the Dept. of Conservation and Recreation's Universal Access Program in Massachusetts State Parks  Don't let physical limitations stop you from enjoying a bike ride! Many well-established bike designs on the market reach beyond the typical concept of the traditional upright two-wheeled bicycle. Adaptive bikes often sport three wheels and offer people with a wide variety of disabilities greater stability and function as they access bike paths, trails, and roads. People using wheelchairs with good upper body strength most commonly use hand cycles - hand and arm powered tricycles which come in either upright touring models or sleek, low riding performance bikes. For people who cannot use their legs to propel themselves, these bikes are a wonderful way to get out of a wheelchair and experience the exercise benefits of cycling. Those with mobility impairments, who are able to pedal with their legs, benefit from recumbent trikes for easier balance. Various designs accommodate people in an upright seated position or a more recumbent mode, with hand controls at thigh height or raised to a conventional handle bar level. A foot-pedaled adult sized trike... . Read the rest at this Bruce Freeman Rail Trail Web page.Also check out: |
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The Abilities Expo is Coming and it's Free!
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September 20-22 2013
The Abilities Expo is an exciting event that travels around the U.S. and as far as Singapore! Abilities features a pavilion of cutting-edge assistive technology, free workshops, adaptive sports events, and much, much more. In September it will be held at the Boston Convention and Exhibit Center (Hall C). MassMATCH is a sponsor and will have a booth! Learn more at this Abilities Expo Web page. |
| Get AT Stuff Highlights |
 GetATStuff--the New England "Craig's List" for AT--currently has hundreds of items available for sale or free throughout the six New England states. As of this writing, GetATStuff highlights include: 9 Vision-related items including an Ameriphone JV35 Large-Button Amplified phone for $25 in Boston.
2 Hearing-related items
Amplified Cordless Telephone for $45 OBO in Manchester, NH
16 Speech Communication-related items
including a 2011 Dynavox Maestro-LIKE NEW- for just $1,000 OBO in Newton, MA
12 Learning, Cognitive, Development related items
including an HR Desktop Computer with webcam, Windows 7 for $300 OBO in Barre, VT
314 Mobility, Seating, and Positioning related items
including a Nova folding bath chair, ideal for travel. $58 OBO in Amherst, MA
290 Daily Living related items
including an alternating pressure and low-air loss therapy mattress for $600 OBO in Pittsfield, MA
68 Environmental Adaptation related items
including a Bruno Electra-Ride Stairway Elevator for $1,500 OBO in Fitchburg, MA
50 Transportation and Vehicle Modification related items
including dadc push/twist hand controls, purchased in 2006 for $500 OBO in Jamaica Plain, MA
8 Computer related items
including a free fully adjustable computer station in Watertown, MA
11 Recreation, Sports, and Leisure related items
including a 3-wheeled handcycle wheelchair (Quickie) for $200 in North Attleboro, MA
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Fun in the Sun!
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 The Department of Conservation and Recreation (DCR) has released its Universal Access Program summer schedule. Here's the place to learn about affordable, adaptive, outdoor fun. Activities include: - Kayaking (Concord, Waltham, Worcester, Hopkinton, Goshen, and Douglas. Mostly $5),
- Canoeing (Gill, Westfield. Also $5),
- Rowing (Holyoke, free),
- Sailing (Boston, "pay what you can"),
- Adaptive Cycling (Hadley, Dalton, Brighton, $3 or use your AOA summer pass),
- Accessible Hiking (many locations, $3/person, $5/family, $12/group),
- Horseback Riding (Topsfield, free!)
Pre-registration is required. Learn dates and times and more at this Universal Access Web page.
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News from the
AT Regional Center
in Boston
| By Center Co-Coordinator Kristi Peak-Oliveira
 The AT Regional Center in Boston (operated by Easter Seals) is excited to announce many new additions to our Assistive Technology Demonstration and Loan Program! Below are just a few examples. Come in for a free demonstration. And remember, if you are a resident of Massachusetts you can borrow these items for up to four weeks - also free! - Voice Me from Broadened Horizons
The ATRC is also looking forward to hosting some great events this summer. A representative from Tobii ATI will give a demonstration of new Tobii products, including the cutting edge PCEye Go. We are also doing a demonstration on Android tablets. Check back for dates! For more information, please contact us at:
Easter Seals ATRC
89 South Street
Boston, MA 02111
617-226-2634
atrc@eastersealsma.org
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News from the
AT Regional Center
in Pittsfield
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 | Dawn Matthews
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The AT Regional Center in Pittsfield, operated by United Cerebral Palsy (UCP)-Berkshire, is also anticipating a variety of new devices for addition to the demonstration and loan program. As of this writing the Papoo Touch handheld AAC device and the Transformer portable electronic video magnifier are available for borrowing. The devices will soon be listed in the MassMATCH Short-Term Device Loan program online inventory. And stay tuned for more! Also check out our upcoming events below.
Contact:
Dawn Matthews
UCP-Berkshire
208 West Street
Pittsfield, MA 01201
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| Upcoming Events | |
iPad for Learners with Significant Special Needs
June 27th, 2013
9:30 a.m. to 12:30 p.m.
Cost: $80
Presented by Kate Ahern, MS Ed
Easter Seals
89 South StBoston, MA 02111Contact: Jean Des Roches508-992-3128 Programming for Students Using Proloquo2GoJuly 9th, 20139:30 a.m. to 12:30 p.m.Cost: $80Presented by Kristi Peak-Oliveira, MS, CCC-SLPEaster Seals
89 South St.Boston, MA 02111Contact: Jean Des Roches508-992-3128 Open House! Learn what the ATRC has to offer YOU! July 10th, 2013 12 p.m. to 2 p.m. Free UCP-Berkshire 208 West Street Pittsfield, Ma 01201 Contact: Dawn Matthews413-442-1562 ext 34 Android vs. iPadJuly 11th, 20139:30 a.m. to 12:30 p.m.Cost: $80Presented by Steven Kessler, MA and Eric Oddleifson, MSOT, OTR/LEaster Seals
484 Main StWorcester, MA 01608Contact: Jean Des Roches508-992-3128 Literacy and AACJuly 18th, 20139:30 a.m. to 12:30 p.m.Cost: $80Presented by Kate Ahern, MS Ed.Easter Seals
89 South StreetBoston, MA 02111Contact: Jean Des Roches508-992-3128 Learn about the New Pocket-Sized Lightwriter Swift by Toby ChurchillAugust 7th, 2013 10 a.m to 12 p.m. Free UCP-Berkshire 208 West Street Pittsfield, Ma 01201 Contact: Dawn Matthews413-442-1562 ext 34 Assistive Technology: Occupational Therapy Practice and Intervention
August 8, 2013
9:30 a.m. to 12:30 p.m.
Cost: $80
Presented by Kevin Berner, MS OTR/L, ATP
Easter Seals
484 Main Street
Worcester, MA 01608
Contact:
Jean Des Roches
508-992-3128
Exploring Computer Access Options
August 13, 2013
9:30 a.m. to 12:30 p.m.
Cost: $80
Presented by Kate Ahern, MS Ed
Easter Seals
484 Main Street
Worcester, MA 01608
Contact:
Jean Des Roches
508-992-3128
Programming for Students using TouchChat
August 20, 2013
9:30 a.m. to 12:30 p.m.
Presented by Susan Malloy, MS, CCC/SLP
Easter Seals
89 South Street
Boston, MA 02111
Contact:
Jean Des Roches
508-992-3128
Drive a VGO!
Learn about this robotic telepresence.
August 21st, 2013
10 a.m. to 12 p.m.
Free
UCP-Berkshire
208 West Street
Pittsfield, Ma 01201
Contact:
Dawn Matthews
413-442-1562 ext 34
Learn about the DaVinci - a high performance desktop magnifier
Sept. 4th, 2013
10 a.m. to 12 p.m.
Free
UCP-Berkshire
208 West Street
Pittsfield, Ma 01201
Contact:
Dawn Matthews
413-442-1562 ext 34
Note: registration deadline is one week prior to many of these workshops. Learn more at this MassMATCH Web page.
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ATinNH's iPad Summer Boot Camp
|  Here's another approach to camp: four days of intensive iPad training as assistive technology (AT)! iPad Boot Camp will take place in Concord, New Hampshire from August 12th-15th, 2013. This is an opportunity for hands-on training with popular workshop presenter Therese Willkomm, Ph.D., ATP, who also directs the New Hampshire Assistive Technology Act program: ATinNH. Attendees will range from educators and assistive technology professionals to therapists, rehabilitation engineers, and lay persons.  | | Dr. Willkomm at a recent iPad Boot Camp event demonstrating her "virtual student" constructed with an iPad and homemade mount. |
The schedule includes an overview day of the iPad, a make-and-take fabrication day for adapting the device for individuals with disabilities, a day of learning about apps for educational success, and a day of learning about the iPad as AT for aging. Learn more at this Institute on Disability/UCED UNH Web page. Dr. Willkomm is the author of AT Solutions in Minutes, her celebrated "how-to" book for fabricating low cost AT solutions for home, school, work and play. And just out this spring comes AT Solutions in Minutes Book II: Ordinary Items, Extraordinary Solutions which includes a DVD of 115 instructional video clips and an XML copy with picture descriptions! Thanks to a grant from the Gibney Foundation, all of the proceeds of this book will fund assistive technology devices for ATinNH device loan and demonstrations. Learn more and/or place an order at this IOD Bookstore Web page. |
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